Today we had another ultrasound with our maternal fetal medicine. This ultrasound was focused on growth of the babies and not necessarily Baby A’s heart. From what I could see, and from the images we have been looking at up until this point, it looks like the left ventricle is still about the same size as the right. It is still critical aortic stenosis and the left side isn’t pumping as well, but I’m hoping there isn’t too much damage-causing change. Our next Fetal Echocardiogram is on December 3rd.
Both babies are growing very well and look great otherwise! Baby A is measuring around 1 lb. 3 oz. and Baby B is measuring at 1 lb. 2 oz.! They are precious to watch, so close together. It’s amazing that there are two babies, even now it is still hard to believe!
The doctor said that Baby A’s Critical Aortic Stenosis could deteriorate, as most do, and become Hypoplastic Left Heart Syndrome. It could deteriorate slowly and not become HLHS and it could remain about the same. This is “at the heart” of what we are praying about right now. My good friend, Amber Fitts, suggested a book to me, Praying Circles Around Your Children, by Mark Batterson. I since have ordered the original book in this series, The Circle Maker, and companion title, Draw the Circle. I have finished Praying Circles Around Your Children and have started The Circle Maker and I can say that these books speak right to the meaning, the purpose, and the significance of prayer.
“Drawing Circles” around a specific prayer and believing God can perform those seemingly impossible miracles is exactly what having Faith is all about. This excerpt from the book really speaks to this-
“There is nothing God loves more than keeping promises, answering prayers,
performing miracles, and fulfilling dreams. That is who He is. That is what He does.
And the bigger the circle we draw, the better, because God gets more glory. The
greatest moments in life are the miraculous moments when human impotence and
divine omnipotence intersect, and they intersect when we draw a circle around the
impossible situations in our lives and invite God to intervene.
I promise you this: God is ready and waiting. So while I have no idea what
circumstances you find yourself in, I’m confident that you are only one prayer away
from a dream fulfilled, a promise kept or a miracle performed.“
Mark Batterson, The Circle Maker
Our continued prayer is that these babies will continue to grow exactly as God would have them grow. We pray God lays His hand on Baby A’s heart and performs miracles that science cannot control right now. Only God can help his heart to slow the damage and create a possibility of less invasive and severe intervention after birth. We believe He has a beautiful plan for these two and our family. It’s difficult when you’re in the thick of it, but God has only given us the GRACE for THIS day. His word is a lamp unto our feet and a light unto our path- the part of the path we are on right now. Trust isn’t easy but the battle is His and we sing, “Thy will be done”.
I have to share a necklace I ordered and I can’t wait to get it in the mail today. Such a fitting verse and message for this journey!
I encourage you to listen to this song, turn up the sound and take in the words. What an amazing, uplifting reminder 🙏🏻
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❤️ Amy
“Battle Belongs”
When all I see is the battle
You see my victory
When all I see is the mountain
You see a mountain moved
And as I walk through the shadow
Your love surrounds me
There’s nothing to fear now
For I am safe with You
So when I fight I’ll fight on my knees
With my hands lifted high
Oh God the battle belongs to You
And every fear I lay at Your feet
I’ll sing through the night
Oh God the battle belongs to You
And if You are for me
Who can be against me (yeah)
For Jesus there’s nothing
Impossible for You
When all I see are the ashes
You see the beauty (thank You God)
When all I see is a cross
God You see the empty tomb
So when I fight I’ll fight on my knees
With my hands lifted high
Oh God the battle belongs to You
And every fear I lay at Your feet
I’ll sing through the night
Oh God the battle belongs to You
Almighty Fortress You go before us
Nothing can stand against
The power of our God
You shine in the shadow
You win every battle
Nothing can stand against
The power of our God
Almighty Fortress You go before us
Nothing can stand against
The power of our God
You shine in the shadow
You win every battle
Nothing can stand against
The power of our God
Almighty Fortress You go before us
Nothing can stand against
The power of our God
You shine in the shadows
You win every battle
Nothing can stand against
The power of our God
So when I fight I’ll fight on my knees
With my hands lifted high
Oh God the battle belongs to You
And every fear I lay at Your feet
I’ll sing through the night
Oh God the battle belongs to You
Oh God the battle belongs to You
Blessed With Boys 