We’ve been working hard to get things ready for our boys to arrive! First, we wanted to get Aaron into a “Big Boy Bed” before they arrive. Too many transitions at once just aren’t a good idea. It turned out great and was our first big project.
Between this room transformation and finishing the nursery, we’ve had another ultrasound and have established our appointments to meet the team in Charlotte at Levine Children’s Hospital for January 26th. Our last fetal echocardiogram was also sent to Boston for review and we are waiting to hear their opinions on Caleb’s heart. On the 26th we will be in Charlotte from 9am to sometime around 3-4pm. We will meet with their Maternal Fetal Medicine Team and have an ultrasound, the single ventricle cline/neurodevelopmental program, the Cardiovascular Surgeon, the pediatric cardiologist for another fetal echocardiogram, the social worker, and the fetal cardiac navigator to discuss what to expect during hospitalization. We will have a phone consult on 2/3 with the neonatology team as well. This is an overwhelming and intimidating day just reading the itinerary and schedule. I choose to think of these meetings as gifts from God. There are so many that don’t know of their child’s CHD ahead of time and never get the chance to meet these amazing medical angels before welcoming their sweet baby. Though there is anxiety and uncertainty, God gives us the Grace to navigate the day at hand. So we ask for prayers as this important day approaches. Prayers for strength, calm nerves, and for the medical staff that we meet. They know we are seeking out Bivent Repair advice from Boston and want the best route possible for Caleb and these boys.
At Wednesday’s ultrasound Caleb weighed in at 3.2 lb. and Gabriel at 3.12 lb. They are growing and passed all the markers for the weekly test they give. Gabriel has a little more fluid around him so they are just keeping an eye on this. We pray it resolves itself and goes back down. The MFM doctor called them “bigger twins”, which was so awesome to hear! They aren’t really big, just a really good size for 31 weeks and this helps Caleb so much. I am not dilated yet, praise God! We need these babies to keep growing!
We are almost done with the nursery! We still need to put up curtains, the mobiles, monitors and finish the closet. Adam has done ALL of the manual labor and has created such a great room for his boys 💙 I’ve been hunting around for things that create a light, airy, and peaceful space. I want this nursery to be a serene place to spend time snuggling these boys. I know they won’t be in here right away, however it will become a great space for them eventually. I chose to have a daybed in this room not only for us to use as needed, but for anyone who might come to help with the boys and Caleb. We can’t wait to rock, read, pray and love on these sweet boys in here!
One thought on “A Big Boy Bed and Twin Nursery”
Dear Ross family, I am so sorry to hear of your loss. We were in this same position almost exactly four years ago when we lost one of our twin daughters at 12 days old. I feel your pain and cry for you. I have been thinking about you for the past several days when I heard what was going on. Please know I am praying for you. This is something you will never get over but I promise it will get better. Now that my surviving twin is almost four, she talks about her sister daily. We have always kept her memory alive and even though it’s painful to think about what could have been we are thankful for the life she lived. Please reach out if you just want to talk, cry, whatever. I am so sorry. Also, you will always be twin parents. Don’t forget that. You asked what we’ve learned from this and I’ve realized how far we have come since we were in your position. It’s made me realize how strong we are and also to know that we are not alone in this struggle. Rest in peace sweet baby.